was successfully added to your cart.

Cart

Tracy’s Blog

Tracy's Blog
December 23, 2014

Fatten our Monthly Check in One Simple Step!

When it comes to computers, I hate to learn new tricks. When Facebook came on the scene several years ago, I had zero patience to…
Read More
Tracy's Blog
February 14, 2014

Share the Love

I'm not a birthday person or a mother's day person but for some reason I love Valentine's Day.  Maybe it's the ubiquitous candy, although Halloween…
Read More
Tracy's Blog
February 7, 2014

What I Said to Congress Today

This morning more than 100 legislative aides packed a briefing room in the halls of Congress to hear about Duchenne and a new drug called…
Read More
Tracy's Blog
December 10, 2013

URGENT CALL FOR HELP

This week Duchenne took the life of a 10-year-old boy. I didn't think I needed a reminder of how crushing, how urgent, how terrifying Duchenne…
Read More
Tracy's Blog
December 6, 2013

No Action is an Action

Dear FDA officials, Please do not delay your decision about Sarepta’s new drug application any longer. Eteplirsen is producing dystrophin in 100% of the boys…
Read More
Tracy's Blog
November 13, 2013

Need your help please, in honor of Charley’s birthday

On Monday, Charley turned 13 years old. Birthdays cause emotional turmoil for all Duchenne parents I know. We’re deeply grateful for every single day with…
Read More
Tracy's Blog
October 3, 2013

Hello FDA, We Have Something Good For You!

Last week, the New York Times reported disappointing news. A promising treatment for Duchenne failed to meet its primary endpoint in a Phase 3 clinical…
Read More