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Laura dalle-pazze
0
Homepage NewsResearch News
April 16, 2019

Dr. Dada Pisconti presents preliminary neutrophil elastase inhibitor data at 2019 MDA conference

You may remember that in 2017, we teamed up with Duchenne UK and Joining Jack to fund research into the potential of neutrophil elastase inhibitors…
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Laura dalle-pazze
0
Homepage NewsResearch News
April 1, 2019

NYTimes spotlights problems — we’ve got solutions underway

Last week, The New York Times ran this article about Duchenne. The story mentions the incredible breakthroughs that are currently taking place in the field, but it also highlights…
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Tracy Seckler
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Homepage NewsResearch News
November 30, 2018

What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?

We recently launched one of our biggest and most important initiatives: The Duchenne Program at UMass Medical School. This brand-new clinic provides coordinated, comprehensive care…
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Laura dalle-pazze
5
Homepage NewsResearch News
September 13, 2017

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…
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Laura dalle-pazze
4
Homepage NewsResearch News
July 22, 2017

What’s next for exon skipping, the personalized medicine that produces dystrophin?

The first exon-skipping treatment for DMD was approved last year, but this is no time to rest on our laurels. We're funding the development of…
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Laura dalle-pazze
6
Stem cells isolated from mouse muscle fibers are grown into myotubes in a culture dish. These structures have muscle fiber-like properties useful for testing drugs like NEIs.
Homepage NewsResearch News
April 28, 2017

What are neutrophil elastase inhibitors, and why do they hold promise for DMD?

Charley's Fund, Duchenne UK, and Joining Jack recently announced a collaborative grant to Dr. Dada Pisconti of the University of Liverpool in England. With this…
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Laura dalle-pazze
0
Research News
April 28, 2017

Charley’s Fund, Duchenne UK, and Joining Jack join forces on grant to investigate new approach to treat DMD

One of our core values is LEVERAGE. So we are very excited to join forces with partners across the Pond to fund a new research…
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Laura dalle-pazze
2
EIM in Action
Homepage NewsResearch News
March 10, 2017

Promising new data about Electrical Impedance Myography for DMD

Harvard doctor and scientist Seward Rutkove recently published new data about Electrical Impedance Myography, a non-invasive outcome measure for Duchenne muscular dystrophy and other muscle diseases. Charley's…
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Charley's Fund Admin
1
Homepage NewsNewsResearch News
September 19, 2016

FDA grants accelerated approval to first drug for Duchenne muscular dystrophy

The U.S. Food and Drug Administration today approved Exondys 51 (eteplirsen) injection, the first drug approved to treat patients with Duchenne muscular dystrophy (DMD). Exondys…
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