Events + Activities

A HUGE thank you to everyone who came out for our first Cheers for Charley bar night at the Ainsworth on NYC’s Lower East Side. With your help we raised more than $6,000 for research. Thank you for helping us fueling the fight to make Duchenne history.

Special thanks to our host committee who made this night possible. Interested in joining next year’s host committee or bringing Cheers for Charley to a local bar near you? Reach out to Stuart at Stay tuned for details for next year!


October 1 – December 1 — Register now!

Calling all kids: Back for its third year, our annual Small kids BIG change! campaign is ready for recruits! Join us for this fun and educational coin collection program where we help kids ages ~6-12(ish) learn that you can make BIG change for the world at any age. Click here to learn more and sign up!

Race Against Time 2019 promises to be extra special, as we commemorate 10 years of this incredible event raising funds and powering progress to defeat Duchenne — to the tune of $1.3+ MLLION to date! Plan to join us for this year’s “race to raise” and a very special 10th-anniversary gathering of food, fun, prizes, and more. Details coming soon…!

Past Events

Thank you for knocking it out of the park!

Everyone knows that the third time’s supposedly a charm, but does it actually work that way? It most certainly did for our 3rd annual Hustle for Muscle 5K and Happy Hour! Held on May 2 in NYC’s Riverside Park, we had a larger crowd than ever before (200+), the rain held out until everyone was under cover, and — most important — we exceeded our fundraising goal! Repeat runners and new faces came together to run (or walk) the course, raise a glass, and come through with a grand total of $83,200 to help defeat Duchenne. Our top fundraisers competed for fantastic prizes including dinner for 10 at Del Friscos steakhouse, a weekend getaway to the Berkshires, and a guided wine tasting with snacks at Tribeca hotspot Terroir.

Huge thanks to our top fundraisers Jeremy Chase, Jami Moore, Doreen Meyers and Samantha Kaplan. Each of our awesome teams brought something extra-special to the table, but we have to share two favorite highlights from our top fundraising teams. “I’ve Got The Runs” definitely wins for best team name. “Chachi’s Cheerleaders” gets big-time credit for bringing the most people (80 plus teammates!!

Stay tuned for information on Hustle for Muscle 2020!

Join us Dec 6th at Liana on NYC's UWS for a sip + shop to benefit Charley's Fund!

A giant thank you to Liana and board member Ellen Wilner for a fantastic Sip + Shop event at Liana Boutique on New York’s Upper West Side! More than $3,500 was raised for research — and a great time had by all, sipping and shopping with our wonderful supporters.

Interested in organizing your own Sip + Shop event? It’s one of our favorite new ways to speed research progress! Contact Stuart at Stuart[at]

2018 Race Against Time

This year’s 2018 Race Against Time raised nearly $150,000 for research! Thank you to all our participants, donors, supporters, and volunteers for making this year’s carnival-themed race a massive success. Stay tuned for updates on our 2019 race! And in the meantime, please visit our Facebook page for pictures from the 2018 event.

THANK YOU for a BLOCKBUSTER 2018 Hustle for Muscle! Our second annual sunset 5K and happy hour in Riverside Park was another night to remember — and a massive boost for our mission — with our biggest crowd and fundraising total yet… more than $63,000 to defeat Duchenne!

Ready to help us rock the next Hustle for Muscle? Mark your calendars – 2019 H4M is happening Thursday May 2! More details coming soon.

And click here to check out some of our favorite 2018 photos on facebook!

Charley’s Fund 2017 Hustle for Muscle 5K & Happy Hour

Date: Thursday, May 4th

Location: Riverside Park, NYC

Thank you to everyone who participated! We crushed our $25,000 goal and raised almost $40,000. We look forward to hustling with you again next year. To view pictures, visit our Facebook page.