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Events + Activities

Want to get in on our mission to defeat Duchenne? We’re all virtual in 2021 — join us for one of our campaigns. We need your help!

Charley’s turning 21 — help us raise $100K to celebrate him and help all boys and young men with Duchenne celebrate more birthdays!

21 is a major milestone for any of us. For Charley, living with Duchenne, it’s huge. Help us with our virtual campaign to raise $100K to celebrate him and make more great birthdays possible for everyone with Duchenne.

Past Events

Sip + Shop at Liana Boutique
Thank you for our spring 2020 ‘goodbye to the drab, hello to the fab!’ edition of this wonderful event. On February 27, the wonderful Liana Boutique on NYC’s Upper West Side hosted their second annual Sip + Shop to stop Duchenne. Thank you to everyone who came out to sip, shop, and speed research, as well as to hosts Liana and board member Ellen Wilner for another wonderful event!

A BIG thank you to all the kids and families who participated in Small Kids BIG Change 2019. Together we raised more than $16,000 to defeat Duchenne. Missed this year’s campaign? Don’t worry — we’ll be back for year 4 in 2020. Our main campaign starts October 1, but it’s always a good time to make change. Contact us, and we can help you run a program whenever you like. For more information or to sign up for next year’s campaign early, click here or email Stuart at

Thank you for joining us for a very special 10th anniversary Race Against Time on November 23. With your help, what began as a small community event has grown to raise nearly $1.4 million for our mission to defeat Duchenne. We are grateful to everyone who joined us for this year’s special 10 week ‘Race to Raise’ and celebratory gathering at Dwight. Thank you to all who came out to raise and celebrate, and to our sponsors for helping us make this year’s festive food hall and fundraising prize extravaganza possible. Stay tuned for more information about Race 2020.

Special thank you to Ellen Wilner, board member and Race Against Time founder, for making 10 years of Racing possible.

A HUGE thank you to everyone who came out for our first Cheers for Charley bar night at the Ainsworth on NYC’s Lower East Side. With your help we raised more than $6,000 for research. Thank you for helping us fueling the fight to make Duchenne history.

Special thanks to our host committee who made this night possible. Interested in joining next year’s host committee or bringing Cheers for Charley to a local bar near you? Reach out to Stuart at Stay tuned for details for next year!



Thank you for knocking it out of the park!

Everyone knows that the third time’s supposedly a charm, but does it actually work that way? It most certainly did for our 3rd annual Hustle for Muscle 5K and Happy Hour! Held on May 2 in NYC’s Riverside Park, we had a larger crowd than ever before (200+), the rain held out until everyone was under cover, and — most important — we exceeded our fundraising goal! Repeat runners and new faces came together to run (or walk) the course, raise a glass, and come through with a grand total of $83,200 to help defeat Duchenne. Our top fundraisers competed for fantastic prizes including dinner for 10 at Del Friscos steakhouse, a weekend getaway to the Berkshires, and a guided wine tasting with snacks at Tribeca hotspot Terroir.

Huge thanks to our top fundraisers Jeremy Chase, Jami Moore, Doreen Meyers and Samantha Kaplan. Each of our awesome teams brought something extra-special to the table, but we have to share two favorite highlights from our top fundraising teams. “I’ve Got The Runs” definitely wins for best team name. “Chachi’s Cheerleaders” gets big-time credit for bringing the most people (80 plus teammates!!

Want to join us in 2020? Mark your calendar’s – HUSTLE is back May 7th in Riverside Park!

Join us Dec 6th at Liana on NYC's UWS for a sip + shop to benefit Charley's Fund!

A giant thank you to Liana and board member Ellen Wilner for a fantastic Sip + Shop event at Liana Boutique on New York’s Upper West Side! More than $3,500 was raised for research — and a great time had by all, sipping and shopping with our wonderful supporters.

Interested in organizing your own Sip + Shop event? It’s one of our favorite new ways to speed research progress! Contact Stuart at Stuart[at]

2018 Race Against Time

This year’s 2018 Race Against Time raised nearly $150,000 for research! Thank you to all our participants, donors, supporters, and volunteers for making this year’s carnival-themed race a massive success. Stay tuned for updates on our 2019 race! And in the meantime, please visit our Facebook page for pictures from the 2018 event.

THANK YOU for a BLOCKBUSTER 2018 Hustle for Muscle! Our second annual sunset 5K and happy hour in Riverside Park was another night to remember — and a massive boost for our mission — with our biggest crowd and fundraising total yet… more than $63,000 to defeat Duchenne!

Ready to help us rock the next Hustle for Muscle? Mark your calendars – 2019 H4M is happening Thursday May 2! More details coming soon.

And click here to check out some of our favorite 2018 photos on facebook!

Charley’s Fund 2017 Hustle for Muscle 5K & Happy Hour

Date: Thursday, May 4th

Location: Riverside Park, NYC

Thank you to everyone who participated! We crushed our $25,000 goal and raised almost $40,000. We look forward to hustling with you again next year. To view pictures, visit our Facebook page.