June 20, 2018
Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’
August 31, 2017
Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’
People.com When Charley Seckler was 3 years old, everyone seemed to notice his big, strong calves. “People always said, ‘Charley, you’re gonna be a soccer…
Jenna Fields
October 30, 2016
Jenna Fields
Jenna Fields, a 7th grader from Potomac, Maryland, was on bus patrol two years ago when she met Owen, an adorable blonde with Duchenne (see the…
Lexi Weintraub
October 30, 2016
Lexi Weintraub
Go-getter Lexi Weintraub of Irvington, NY gets a gold medal for organizing and executing a fundraiser in record time! When Lexi learned about Charley’s Fund in May,…
Join us October 16th in New York for the 2016 Race Against Time!
October 2, 2016
Join us October 16th in New York for the 2016 Race Against Time!
The Race Against Time is back for the seventh year in a row, and 2016 promises to be a milestone year, both for the Race…
September 29, 2016
Progress Update 2016
Jordan Tolchin
September 27, 2016
Jordan Tolchin
When Jordan Tolchin had a birthday coming up, his parents decided to use the opportunity to teach him the value of giving back. His mom…
FDA grants accelerated approval to first drug for Duchenne muscular dystrophy
The U.S. Food and Drug Administration today approved Exondys 51 (eteplirsen) injection, the first drug approved to treat patients with Duchenne muscular dystrophy (DMD). Exondys…
August 23, 2016
Lessons from a teenage wise man
Summit Keeps Climbing
August 22, 2016
Summit Keeps Climbing
It's taking a long time, but it's happening! Summit Therapeutics, a UK-based company we began supporting nine years ago, is making significant progress on its experimental…