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About Charley

He’s a neat freak and a fashion maven. He collects sunglasses and watches Chef’s Table. He reads restaurant reviews on YELP and loves modern design. He’s our founding inspiration for a mission focused on helping everyone with Duchenne. Now 22 years old and a senior at NYU, Charley is full of life. Spend a little time with him, and you would never know that his story began with all the makings of a real-life tragedy. Here are some of our favorite Charley photos from over the years.