The Year of Doing Everything
July 16, 2010
The Year of Doing Everything
Charley is 9 and three quarters years old. When I was a kid looking forward to turning 10, all I could think about was "double…
Melanie Scopellite
June 30, 2010
Melanie Scopellite
While many girls eagerly await gifts for their sweet 16th birthday parties Melanie generously asked for donations to Charley’s Fund in her name in lieu…
Broken Wrist
May 9, 2010
Broken Wrist
Sometimes for a few blissful minutes, I forget that Charley has DMD. To you that might seem impossible, since we're constantly faced with daily reminders…
Thank god for school!
September 9, 2009
Thank god for school!
This may not sound right but I have to say it anyway -- thank god the kids are back in school!!!!! Summer was full and…
Charley Gets a Boost of Electricity
June 12, 2009
Charley Gets a Boost of Electricity
We've definitely entered a new phase in terms of Charley's awareness of his disease. We are transitioning out of the "honeymoon phase," when the limitations…
Welcome Cheryl!
February 28, 2009
Welcome Cheryl!
When I look back to review previous blogs, I realize how huge the chasm is between what goes on in our lives and what gets…
December update
December 11, 2008
December update
We are just back from a weekend in New York City, where hundreds of shoppers streamed into my sister Kathe’s apartment to buy lingerie, fur…
Charley’s 8th Birthday
November 10, 2008
Charley’s 8th Birthday
Charley's birthday is tomorrow, always a day of extreme mixed emotions for me. No mixed emotions for Charley, thank God...he is 100% thrilled. Charley can't…