While many girls eagerly await gifts for their sweet 16th birthday parties Melanie generously asked for donations to Charley’s Fund in her name in lieu…
Sometimes for a few blissful minutes, I forget that Charley has DMD. To you that might seem impossible, since we're constantly faced with daily reminders…
We've definitely entered a new phase in terms of Charley's awareness of his disease. We are transitioning out of the "honeymoon phase," when the limitations…
Charley's birthday is tomorrow, always a day of extreme mixed emotions for me. No mixed emotions for Charley, thank God...he is 100% thrilled. Charley can't…