Dear FDA officials, Please do not delay your decision about Sarepta’s new drug application any longer. Eteplirsen is producing dystrophin in 100% of the boys…
On Monday, Charley turned 13 years old. Birthdays cause emotional turmoil for all Duchenne parents I know. We’re deeply grateful for every single day with…
For his bar mitzvah project, 13-year-old Michael Gutterman planned and executed a successful fundraiser from soup to nuts! Using the Darius Goes West “Host a…