We've definitely entered a new phase in terms of Charley's awareness of his disease. We are transitioning out of the "honeymoon phase," when the limitations…
Charley's birthday is tomorrow, always a day of extreme mixed emotions for me. No mixed emotions for Charley, thank God...he is 100% thrilled. Charley can't…
We’ve just arrived home from a phenomenal two weeks in Israel. Charley’s cousin Xander became a bar-mitzvah at the Western Wall. His generous parents invited…