This may not sound right but I have to say it anyway -- thank god the kids are back in school!!!!! Summer was full and…

We've definitely entered a new phase in terms of Charley's awareness of his disease. We are transitioning out of the "honeymoon phase," when the limitations…

When I look back to review previous blogs, I realize how huge the chasm is between what goes on in our lives and what gets…

We are just back from a weekend in New York City, where hundreds of shoppers streamed into my sister Kathe’s apartment to buy lingerie, fur…

Charley's birthday is tomorrow, always a day of extreme mixed emotions for me. No mixed emotions for Charley, thank God...he is 100% thrilled. Charley can't…

Our vacation week in the Hamptons could not have been more glorious. For the first time in a very long time, the weather was our…

Just when I think life can't get any busier...ok, let me just spit it out, we got a puppy!!!!! Almost everyone I know looks at…

We’ve just arrived home from a phenomenal two weeks in Israel. Charley’s cousin Xander became a bar-mitzvah at the Western Wall. His generous parents invited…

Anyone who hung out with Charley this summer knows he has a new look. He acquired some key accessories to look “cool,

Somewhat ironically, I am spending this summer trying as hard as I can to blend in with the crowd. After years of aiming to distinguish…