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Duchenne muscular dystrophy is the #1 genetic killer of children worldwide. We’re making historic progress to beat it.
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Fifteen years into our fight, co-founders Tracy and Benjy Seckler share some reflections in a video letter to our supporters.
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We are Charley’s Fund
44
DEPLOYED to advance new therapies
100,000
RAISED through The Race to Yes
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MOVING with our support
Charley
Charley, an 18-year-old spitfire, is our original inspiration. Over the past 12 years we have met many other children whose colorful personalities and intense passions deepen our resolve to end Duchenne.
Him
Updates & Inspiration
February 25, 2020
Nonprofit Foundations Launch Study to Improve Preclinical Research
Goal: improve future decision-making in the selection of drugs to advance to clinical trials in Duchenne muscular dystrophy President and COO Laura with our partners…
February 6, 2020
New publication further supports promise of EIM
Innovative device could power smaller, faster trials for Duchenne muscular dystrophy and open clinical trial participation to broader range of patients A key focus…
July 23, 2019
Big Boost for Impact Initiative
Today, we are grateful and encouraged to announce that three of our partner organizations are throwing their weight — and some serious financial firepower —…
April 16, 2019
Dr. Dada Pisconti presents preliminary neutrophil elastase inhibitor data at 2019 MDA conference
You may remember that in 2017, we teamed up with Duchenne UK and Joining Jack to fund research into the potential of neutrophil elastase inhibitors…