February 25, 2019
How one family took a classic coin collection virtual for BIG impact
If you ever had a doubt that small kids can make BIG change, then it’s time for you to meet Mia and Liam Seshadri. With…
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Duchenne muscular dystrophy is the #1 genetic killer of children worldwide. We’re making historic progress to beat it.
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Join us May 2 in New York City for our annual Sunset 5K and Happy Hour to defeat Duchenne
In honor of Charley’s 18th birthday, we present…
Charley’s Coffee Club
Fueling research for a cure. One cup at a time.
Introducing a new way to support Charley’s Fund. Meet Charley’s Coffee Club, our monthly giving program.
We are Charley’s Fund
Charley
Charley, a 17-year-old spitfire, is our original inspiration. Over the past 12 years we have met many other children whose colorful personalities and intense passions deepen our resolve to end Duchenne.
Him
Updates & Inspiration
February 16, 2019
How do you speed research in style? Host a sip and shop to stop Duchenne!
One Thursday evening last December, supporters from across New York stepped in from the cold for a special evening of camaraderie and shopping to benefit…
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February 9, 2019
Small Kids BIG Change Helps Kids Learn to Give Back
In 2017, a group of Charley’s Fund supporters on New York’s Upper West Side decided they wanted to find a way to involve their young…
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February 6, 2019
Meet Cassidy Wohl and “Hip-Hop to Stop Duchenne”
Cassidy is a 7thgrader in Rye Brook, New York. With both her 12thbirthday and her bat mitzvah coming up, she had an idea: Make them into…
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November 30, 2018
Dodge Ball Win
I recently came across some old photos. They depict Charley in fifth grade winning a dodge ball tournament. Yes, you got that right. As you…
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November 30, 2018
What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?
We recently launched one of our biggest and most important initiatives: The Duchenne Program at UMass Medical School. This brand-new clinic provides coordinated, comprehensive care…
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