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Duchenne muscular dystrophy is the #1 genetic killer of children worldwide. We’re making historic progress to beat it.
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We are Charley’s Fund
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DEPLOYED to advance new therapies
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RAISED through The Race to Yes
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MOVING with our support
Charley
Charley, now nearly 21 years old and a college student in NYC, is our original inspiration. Over the past 17 years we have met many other children whose colorful personalities and intense passions deepen our resolve to end Duchenne.
Him
Updates & Inspiration
November 19, 2020
Dr. Brenda Wong is on a mission to advance comprehensive coordinated care for Duchenne
Duchenne is notorious for its impact on muscles, but the disease attacks practically every system in the body. To help people with Duchenne live the…
February 25, 2020
Nonprofit Foundations Launch Study to Improve Preclinical Research
Goal: improve future decision-making in the selection of drugs to advance to clinical trials in Duchenne muscular dystrophy President and COO Laura with our partners…
February 6, 2020
New publication further supports promise of EIM
Innovative device could power smaller, faster trials for Duchenne muscular dystrophy and open clinical trial participation to broader range of patients A key focus…
