Laura dalle-pazze, Author at Charley's Fund

Fundraising Ideas Homepage News

February 25, 2019

How one family took a classic coin collection virtual for BIG impact

Small Kids. BIG Change! 2019 starts October 1. Want in? Register today! If you ever had a doubt that small kids can make BIG change,…

Laura dalle-pazze

Love0

Fundraising Ideas Homepage News

February 16, 2019

How do you speed research in style? Host a sip and shop to stop Duchenne!

One Thursday evening last December, supporters from across New York stepped in from the cold for a special evening of camaraderie and shopping to benefit…

Laura dalle-pazze

Love0

Fundraising Ideas Homepage News

February 9, 2019

Small Kids BIG Change Helps Kids Learn to Give Back

In 2017, a group of Charley’s Fund supporters on New York’s Upper West Side decided they wanted to find a way to involve their young…

Laura dalle-pazze

Love0

Fundraising Ideas Homepage News

February 6, 2019

Meet Cassidy Wohl and “Hip-Hop to Stop Duchenne”

Cassidy is a 7thgrader in Rye Brook, New York. With both her 12thbirthday and her bat mitzvah coming up, she had an idea: Make them into…

Laura dalle-pazze

Love0

Homepage News Research News

September 5, 2018

Smart videos for smarter clinical trials

A mission-critical need right now in the fight against Duchenne is the development of good tools to help evaluate whether a new treatment is working.…

Laura dalle-pazze

Love0

Homepage News Research News

September 13, 2017

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…

Laura dalle-pazze

Love5

Homepage News Research News

July 22, 2017

What’s next for exon skipping, the personalized medicine that produces dystrophin?

The first exon-skipping treatment for DMD was approved last year, but this is no time to rest on our laurels. We're funding the development of…

Laura dalle-pazze

Love4

Stem cells isolated from mouse muscle fibers are grown into myotubes in a culture dish. These structures have muscle fiber-like properties useful for testing drugs like NEIs.

Homepage News Research News

April 28, 2017

What are neutrophil elastase inhibitors, and why do they hold promise for DMD?

Charley's Fund, Duchenne UK, and Joining Jack recently announced a collaborative grant to Dr. Dada Pisconti of the University of Liverpool in England. With this…

Laura dalle-pazze

Love6

Research News

April 28, 2017

Charley’s Fund, Duchenne UK, and Joining Jack join forces on grant to investigate new approach to treat DMD

One of our core values is LEVERAGE. So we are very excited to join forces with partners across the Pond to fund a new research…

Laura dalle-pazze

Love0

Homepage News Research News

March 10, 2017

Promising new data about Electrical Impedance Myography for DMD

Harvard doctor and scientist Seward Rutkove recently published new data about Electrical Impedance Myography, a non-invasive outcome measure for Duchenne muscular dystrophy and other muscle diseases. Charley's…

Laura dalle-pazze

Love2

Laura dalle-pazze

How one family took a classic coin collection virtual for BIG impact

How do you speed research in style? Host a sip and shop to stop Duchenne!

Small Kids BIG Change Helps Kids Learn to Give Back

Meet Cassidy Wohl and “Hip-Hop to Stop Duchenne”

Smart videos for smarter clinical trials

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

What’s next for exon skipping, the personalized medicine that produces dystrophin?

What are neutrophil elastase inhibitors, and why do they hold promise for DMD?

Charley’s Fund, Duchenne UK, and Joining Jack join forces on grant to investigate new approach to treat DMD

Promising new data about Electrical Impedance Myography for DMD

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