February 6, 2019
Meet Cassidy Wohl and “Hip-Hop to Stop Duchenne”
Cassidy is a 7thgrader in Rye Brook, New York. With both her 12thbirthday and her bat mitzvah coming up, she had an idea: Make them into…
September 5, 2018
Smart videos for smarter clinical trials
A mission-critical need right now in the fight against Duchenne is the development of good tools to help evaluate whether a new treatment is working.…
September 13, 2017
New trial for a ‘molecular band-aid’ to help DMD hearts and lungs
Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…
April 28, 2017
Charley’s Fund, Duchenne UK, and Joining Jack join forces on grant to investigate new approach to treat DMD
One of our core values is LEVERAGE. So we are very excited to join forces with partners across the Pond to fund a new research…
February 17, 2017
Marathon Pharmaceuticals, Come on Down
I love good news just as much as the next person, so I would’ve loved to shout from the rooftops last week when the FDA…
December 29, 2016
A Tiny Big Moment
Charley and friends touring a Hudson Valley distillery (Jackson's on the left) I know a blog is supposed to be regular. But I just can’t…
October 31, 2016
Event Roundup: 2016 Race Against Time Lights Up Central Park!
Charley’s Fund took Central Park by storm earlier this month! More than 320 people participated in our 2016 Race Against Time. Our half marathoners and scavenger…