Last week, the New York Times reported disappointing news. A promising treatment for Duchenne failed to meet its primary endpoint in a Phase 3 clinical…

Charley is finally in a clinical trial! It is so surreal and miraculous to be participating in this historic leap forward in the fight against…

Last Thursday started and ended with depressingly similar phone calls, a pair of dreary bookends on either side of a rainy day.  The morning call…

Of course I do the turkey thing in November like everyone else. But today I'm feeling like I need more days of giving thanks than…

Three days from now… this coming Sunday… 11/11… Charley Turns 12 and he's still lovin' life! Last year we made a huge deal about Charley's 11th birthday.  We appeared on…