I must admit, the subject of this blog arises from dual motives, one completely legitimate and the other not so pure. Instead of crafting my…

I haven't reported yet about our first official Charley's Fund event, which took place in Rumson, NJ on June 13. It was a strange and…

It's been three weeks since the DMD conference in Cincinnati, and I am still reeling from the onslaught of information. I was expecting an intense…

Hands down, the highlight of my day is going to the mailbox. Mornings here in the Seckler household are totally chaotic. I have a crazy…

Most people who know us ask two questions. How is Charley? and How much money have you raised? I've addressed the latter in my blog…

I am truly amazed at the power of the internet. Our website has made its way to so many people, including old camp friends, friends-of-friends,…

Hello and welcome to my blog. I am Charley's mom. Every few days I will write in this journal to give you the most up-to-date…

Urge the FDA to Say YES to Accelerated Approval for safe, effective therapies for children with Duchenne. We urge the Food and Drug Administration (FDA)…