August 21, 2015
Seismic Shift Underfoot
A couple of weeks ago, I spoke to a woman from Miami whose 6-year-old son was recently diagnosed with Duchenne. We talked for a while,…
August 21, 2015
Chicken or Egg No Matter
Charley’s going to high school next year. The very thought of it has been enough to nauseate me. TheHealthSite.com lists the #1 cause of frequent…
August 15, 2015
Seismic Shift Underfoot
Charley hanging out at a friend's pool (Thank you Silvermans for always having us over to swim -- love you guys!) A couple of weeks…
June 22, 2015
June newsletter
CHARLeNews June 2015 In this Issue: In the Clinic — BREAKING NEWS: HT-100 Increases Strength Upcoming Event — Cycle the Berkshires Event Debrief — Snoop Dogg on Stage with Charley…
April 27, 2015
Chicken or Egg No Matter
Charley’s going to high school next year. The very thought of it has been enough to nauseate me. TheHealthSite.com lists the #1 cause of frequent…
April 27, 2015
A Week Away
I’m posting this as we fly home from Samana Peninsula, Dominican Republic. This was our family’s first “pure” vacation. We didn’t go because the location is on…
December 26, 2014
From Hospital to Beach and Back
Double down, go for broke, swing for the fences... we're doing it for Charley who does it every day! Case in point: the double loin…
December 23, 2014
Fatten our Monthly Check in One Simple Step!
When it comes to computers, I hate to learn new tricks. When Facebook came on the scene several years ago, I had zero patience to…
July 30, 2014
White House Weighs In
Since late February, the Race to Yes has been shouting from the rooftops: “Our children are dying, and we need help.” Treatments are on the…
March 24, 2014
What Next?
As we approach the White House petition deadline on Friday of this week, we are hyper-focused on two things: 1) reaching the 100k goal 2)…