February 9, 2019
Small Kids BIG Change Helps Kids Learn to Give Back
In 2017, a group of Charley’s Fund supporters on New York’s Upper West Side decided they wanted to find a way to involve their young…
February 6, 2019
Meet Cassidy Wohl and “Hip-Hop to Stop Duchenne”
Cassidy is a 7thgrader in Rye Brook, New York. With both her 12thbirthday and her bat mitzvah coming up, she had an idea: Make them into…
November 30, 2018
Dodge Ball Win
I recently came across some old photos. They depict Charley in fifth grade winning a dodge ball tournament. Yes, you got that right. As you…
November 30, 2018
What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?
We recently launched one of our biggest and most important initiatives: The Duchenne Program at UMass Medical School. This brand-new clinic provides coordinated, comprehensive care…
September 5, 2018
Smart videos for smarter clinical trials
A mission-critical need right now in the fight against Duchenne is the development of good tools to help evaluate whether a new treatment is working.…
August 31, 2018
Happy to be Here, In the Moment
The relief in Charley’s voice was audible, even though the cell phone connection wasn’t crystal clear. You have no idea how happy I am to…
June 30, 2018
D-Day
D-Day. We all know it, of course, as a pivotal moment in world history. The day in June 1944 when the Allied forces stormed the…
June 20, 2018
Charley’s Fund 2018
March 16, 2018
Charley Sets Me Straight
Charley sat in the passenger side of my car, taking deep breaths and talking to himself. I can't do this. I don't want to do…