May 4, 2020
Thrown for a Loop
Charley at an NYU club meeting, before the term "social distancing" became a household phrase. I know irony is supposed to be bitter, but this…
December 27, 2019
The 2019 Roller Coaster
If I had to pick a metaphor to describe the year 2019, it would most definitely be a roller coaster. I know that’s a total…
October 11, 2019
Freeze that Moment
After 20 years of chaos and noise and mess and cacophony (rearing three kids), Benjy and I now find ourselves with an “empty nest.” It’s weird…
July 24, 2019
A Simple Lunch
Charley made this for lunch today. I know it’s just a midday meal, and I know that people have a tendency to over-share photos of…
May 31, 2019
Messy Moments
Charley and the ladies -- Spring Break 2019. WARNING: Typically I sit down to write a blog post when a particular moment or experience strikes…
February 28, 2019
Guest Blogger! Charley Opens Up
Once a month, Charley shares his musings on life with Charley's Coffee Club, our dedicated group of donors who've signed up to make automatic monthly…
November 30, 2018
Dodge Ball Win
I recently came across some old photos. They depict Charley in fifth grade winning a dodge ball tournament. Yes, you got that right. As you…
November 30, 2018
What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?
We recently launched one of our biggest and most important initiatives: The Duchenne Program at UMass Medical School. This brand-new clinic provides coordinated, comprehensive care…