February 17, 2017
Marathon Pharmaceuticals, Come on Down
I love good news just as much as the next person, so I would’ve loved to shout from the rooftops last week when the FDA…
October 30, 2016
Jenna Fields
Jenna Fields, a 7th grader from Potomac, Maryland, was on bus patrol two years ago when she met Owen, an adorable blonde with Duchenne (see the…
August 23, 2016
Lessons from a teenage wise man
August 22, 2016
Summit Keeps Climbing
It's taking a long time, but it's happening! Summit Therapeutics, a UK-based company we began supporting nine years ago, is making significant progress on its experimental…
May 22, 2016
We remain active on other medical research fronts
While we aggressively advocate for the approval of eteplirsen, we remain active on other medical research fronts. It's important to remember that eteplirsen helps 13%…
April 12, 2016
Meet the Impact Initiative
You probably already know that Charley's Fund is supporting the development of several new medicines to slow or halt Duchenne's deadly progression. Our goal is…