September 5, 2018
Smart videos for smarter clinical trials
A mission-critical need right now in the fight against Duchenne is the development of good tools to help evaluate whether a new treatment is working.…
October 27, 2017
The Woman Behind the Woman
This blog post is not about Charley. It’s not about a boy with Duchenne. It’s not even about a boy. It’s about a woman. But…
September 13, 2017
New trial for a ‘molecular band-aid’ to help DMD hearts and lungs
Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…
August 31, 2017
Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’
People.com When Charley Seckler was 3 years old, everyone seemed to notice his big, strong calves. “People always said, ‘Charley, you’re gonna be a soccer…
February 17, 2017
Marathon Pharmaceuticals, Come on Down
I love good news just as much as the next person, so I would’ve loved to shout from the rooftops last week when the FDA…
October 30, 2016
Jenna Fields
Jenna Fields, a 7th grader from Potomac, Maryland, was on bus patrol two years ago when she met Owen, an adorable blonde with Duchenne (see the…