November 30, 2018
Dodge Ball Win
I recently came across some old photos. They depict Charley in fifth grade winning a dodge ball tournament. Yes, you got that right. As you…
November 30, 2018
What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?
We recently launched one of our biggest and most important initiatives: The Duchenne Program at UMass Medical School. This brand-new clinic provides coordinated, comprehensive care…
September 5, 2018
Smart videos for smarter clinical trials
A mission-critical need right now in the fight against Duchenne is the development of good tools to help evaluate whether a new treatment is working.…
October 27, 2017
The Woman Behind the Woman
This blog post is not about Charley. It’s not about a boy with Duchenne. It’s not even about a boy. It’s about a woman. But…
September 13, 2017
New trial for a ‘molecular band-aid’ to help DMD hearts and lungs
Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…
August 31, 2017
Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’
People.com When Charley Seckler was 3 years old, everyone seemed to notice his big, strong calves. “People always said, ‘Charley, you’re gonna be a soccer…
