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February 16, 2019

How do you speed research in style? Host a sip and shop to stop Duchenne!

One Thursday evening last December, supporters from across New York stepped in from the cold for a special evening of camaraderie and shopping to benefit…

Laura dalle-pazze

Love4

Fundraising Ideas Homepage News

February 9, 2019

Small Kids BIG Change Helps Kids Learn to Give Back

In 2017, a group of Charley’s Fund supporters on New York’s Upper West Side decided they wanted to find a way to involve their young…

Laura dalle-pazze

Love3

Fundraising Ideas Homepage News

February 6, 2019

Meet Cassidy Wohl and “Hip-Hop to Stop Duchenne”

Cassidy is a 7thgrader in Rye Brook, New York. With both her 12thbirthday and her bat mitzvah coming up, she had an idea: Make them into…

Laura dalle-pazze

Love3

Homepage News Tracy's Blog

November 30, 2018

Dodge Ball Win

I recently came across some old photos. They depict Charley in fifth grade winning a dodge ball tournament. Yes, you got that right. As you…

Tracy Seckler

Love10

Homepage News Research News

November 30, 2018

What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?

We recently launched one of our biggest and most important initiatives: The Duchenne Program at UMass Medical School. This brand-new clinic provides coordinated, comprehensive care…

Tracy Seckler

Love5

Homepage News Research News

September 5, 2018

Smart videos for smarter clinical trials

A mission-critical need right now in the fight against Duchenne is the development of good tools to help evaluate whether a new treatment is working.…

Laura dalle-pazze

Love2

Homepage News Tracy's Blog

October 27, 2017

The Woman Behind the Woman

This blog post is not about Charley. It’s not about a boy with Duchenne. It’s not even about a boy. It’s about a woman. But…

Tracy Seckler

Love4

Homepage News Research News

September 13, 2017

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…

Laura dalle-pazze

Love5

Homepage News News

August 31, 2017

Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’

People.com When Charley Seckler was 3 years old, everyone seemed to notice his big, strong calves. “People always said, ‘Charley, you’re gonna be a soccer…

Charley's Fund Admin

Love6

Homepage News Tracy's Blog

July 31, 2017

“Let’s just say that my life is a combination of bitter and sweet.”

“Let's just say that my life is a combination of bitter and sweet.” I try not to make a habit of plagiarizing my kids, but…

Tracy Seckler

Love2

Homepage News

How do you speed research in style? Host a sip and shop to stop Duchenne!

Small Kids BIG Change Helps Kids Learn to Give Back

Meet Cassidy Wohl and “Hip-Hop to Stop Duchenne”

Dodge Ball Win

What’s happening — and what’s in the works — for The Duchenne Program at UMass Medical School?

Smart videos for smarter clinical trials

The Woman Behind the Woman

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’

“Let’s just say that my life is a combination of bitter and sweet.”

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