Blog - Page 4 of 17 - Charley's Fund - Fighting Duchenne Muscular Dystrophy

Homepage News Tracy's Blog

October 27, 2017

The Woman Behind the Woman

This blog post is not about Charley. It’s not about a boy with Duchenne. It’s not even about a boy. It’s about a woman. But…

Tracy Seckler

Love4

Tracy's Blog

September 13, 2017

On the Go

Charley at work this summer in Brooklyn I never imagined myself saying this. But incredibly, it’s true. Charley cannot sit still. Of course he can’t…

Tracy Seckler

Love1

Homepage News Research News

September 13, 2017

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

Several DMD organizations recently teamed up to fund a Phase 2 clinical trial of a new therapy for Duchenne muscular dystrophy (DMD) – Carmeseal-MD. Carmeseal-MD…

Laura dalle-pazze

Love5

Homepage News News

August 31, 2017

Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’

People.com When Charley Seckler was 3 years old, everyone seemed to notice his big, strong calves. “People always said, ‘Charley, you’re gonna be a soccer…

Charley's Fund Admin

Love6

Homepage News Tracy's Blog

July 31, 2017

“Let’s just say that my life is a combination of bitter and sweet.”

“Let's just say that my life is a combination of bitter and sweet.” I try not to make a habit of plagiarizing my kids, but…

Tracy Seckler

Love2

Homepage News Research News

July 22, 2017

What’s next for exon skipping, the personalized medicine that produces dystrophin?

The first exon-skipping treatment for DMD was approved last year, but this is no time to rest on our laurels. We're funding the development of…

Laura dalle-pazze

Love4

Tracy's Blog

May 31, 2017

A Boy and a Symbol

Just a boy and his sister on Spring Break I know my updates are all about Charley, all the time. There are a couple of…

Tracy Seckler

Love5

Stem cells isolated from mouse muscle fibers are grown into myotubes in a culture dish. These structures have muscle fiber-like properties useful for testing drugs like NEIs.

Homepage News Research News

April 28, 2017

What are neutrophil elastase inhibitors, and why do they hold promise for DMD?

Charley's Fund, Duchenne UK, and Joining Jack recently announced a collaborative grant to Dr. Dada Pisconti of the University of Liverpool in England. With this…

Laura dalle-pazze

Love6

Research News

April 28, 2017

Charley’s Fund, Duchenne UK, and Joining Jack join forces on grant to investigate new approach to treat DMD

One of our core values is LEVERAGE. So we are very excited to join forces with partners across the Pond to fund a new research…

Laura dalle-pazze

Love0

Homepage News Research News

March 10, 2017

Promising new data about Electrical Impedance Myography for DMD

Harvard doctor and scientist Seward Rutkove recently published new data about Electrical Impedance Myography, a non-invasive outcome measure for Duchenne muscular dystrophy and other muscle diseases. Charley's…

Laura dalle-pazze

Love2

The Woman Behind the Woman

On the Go

New trial for a ‘molecular band-aid’ to help DMD hearts and lungs

Mom Starts Fund to Find Cure for Duchenne Muscular Dystrophy After Son’s Fatal Diagnosis: ‘There’s No Way I Can Give Up’

“Let’s just say that my life is a combination of bitter and sweet.”

What’s next for exon skipping, the personalized medicine that produces dystrophin?

A Boy and a Symbol

What are neutrophil elastase inhibitors, and why do they hold promise for DMD?

Charley’s Fund, Duchenne UK, and Joining Jack join forces on grant to investigate new approach to treat DMD

Promising new data about Electrical Impedance Myography for DMD

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