Blog - Page 2 of 17 - Charley's Fund - Fighting Duchenne Muscular Dystrophy

Tracy's Blog

October 11, 2019

Freeze that Moment

After 20 years of chaos and noise and mess and cacophony (rearing three kids), Benjy and I now find ourselves with an “empty nest.” It’s weird…

Tracy Seckler

Love1

Fundraising Ideas

September 22, 2019

Introducing Small Kids BIG Change badges!

Are you participating in this year's Small Kids. BIG Change! program? Get excited — we've got something new for you! Introducing: SKBC Badges! Collect them…

Laura dalle-pazze

Love6

Homepage News News

August 7, 2019

UMass clinic makes strides for Duchenne patients by integrating care, research

The Duchenne Program at University of Massachusetts Medical School celebrated its first anniversary in July, and according to its founding director, pediatric neurologist Dr. Brenda…

Laura dalle-pazze

Love27

Tracy's Blog

July 24, 2019

A Simple Lunch

Charley made this for lunch today. I know it’s just a midday meal, and I know that people have a tendency to over-share photos of…

Tracy Seckler

Love1

Homepage News Research News

July 23, 2019

Big Boost for Impact Initiative

Today, we are grateful and encouraged to announce that three of our partner organizations are throwing their weight — and some serious financial firepower —…

Laura dalle-pazze

Love3

Tracy's Blog

May 31, 2019

Messy Moments

Charley and the ladies -- Spring Break 2019. WARNING: Typically I sit down to write a blog post when a particular moment or experience strikes…

Tracy Seckler

Love1

Homepage News Research News

April 16, 2019

Dr. Dada Pisconti presents preliminary neutrophil elastase inhibitor data at 2019 MDA conference

You may remember that in 2017, we teamed up with Duchenne UK and Joining Jack to fund research into the potential of neutrophil elastase inhibitors…

Laura dalle-pazze

Love3

Homepage News Research News

April 1, 2019

NYTimes spotlights problems — we’ve got solutions underway

Last week, The New York Times ran this article about Duchenne. The story mentions the incredible breakthroughs that are currently taking place in the field, but it also highlights…

Laura dalle-pazze

Love3

Tracy's Blog

February 28, 2019

Guest Blogger! Charley Opens Up

Once a month, Charley shares his musings on life with Charley's Coffee Club, our dedicated group of donors who've signed up to make automatic monthly…

Tracy Seckler

Love1

Fundraising Ideas Homepage News

February 25, 2019

How one family took a classic coin collection virtual for BIG impact

Small Kids. BIG Change! 2019 starts October 1. Want in? Register today! If you ever had a doubt that small kids can make BIG change,…

Laura dalle-pazze

Love3

Freeze that Moment

Introducing Small Kids BIG Change badges!

UMass clinic makes strides for Duchenne patients by integrating care, research

A Simple Lunch

Big Boost for Impact Initiative

Messy Moments

Dr. Dada Pisconti presents preliminary neutrophil elastase inhibitor data at 2019 MDA conference

NYTimes spotlights problems — we’ve got solutions underway

Guest Blogger! Charley Opens Up

How one family took a classic coin collection virtual for BIG impact

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